Monday, November 2, 2009

"Bulgaria or Bust" Adoption Silent Auction

The Rieben's are holding a Silent Auction: November 1-15, 2010 to help raise the funds to bring 2 new members into their family. Evan is getting a Brother (who has AMC too) & Sister this time!!

In addition to the auction, they are also doing a GIVEAWAY that is *FREE* to enter...just post their auction info on your Facebook page, Twitter or Blog & leave a comment on the post dated: Thursday, November 19, 2009 Entitled: ""Bulgaria or Bust" Adoption Silent Auction " to let them know you helped get the word out!

Follow The Rieben's Journey on From the Trenches of Adoption:

Desi's Delights on Etsy
This shop was created to help raise funds to grow our family through the miracle of adoption. In addition to raising funds for our own adoption, 10% of the proceeds from each sale will go directly to the grant funds of children with special needs who are still waiting for their forever family.

Reece's Rainbow: is a registered 501(c)3 charity which promotes and facilitates the international adoption and rescue of children with Down syndrome in particular.

Grab This Button

Friday, October 30, 2009

"ChipIn" to help fund raise for Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

"ChipIn" to help fund raise for Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)

Come celebrate AMCSI's 5th Birthday at Walt Disney World!! Our 5th Annual AMC Support Convention will be held in Orlando, Florida - August 4-8, 2010!! For more information on how you can attend, contact our convention co-chairs; MaryBeth Eberhard, Maureen Goede, Savanna Keeton, and Theresa Tamash by emailing:

Tuesday, June 23, 2009

The Road to Sophie and Sawyer

The Road to Sophie and Sawyer

Somewhere in the world there are children. They are cute as a button but have no Mama to cuddle them. No Papa to make them laugh I am a Mama who is missing some children to cuddle and love and make laugh. This is our journey to bring those children to their Mama and bring Mama to her children.

Allen & Annie
Grab This Button

Saturday, April 11, 2009

New items at great prices in our AMCSI Store on eBay!!

New items at great prices in our AMCSI Store on eBay!!

Items we currently sell:
Adaptive Digital Keyboards,
Picture Communication Symbol Books,
Duralife Adaptive Bathtub Seats, and
Elastic Shoe Laces.

Payment policy: PayPal Only

Return policy: All sales are final.

Contact information:
Reenee Donohoe,
Theresa Lucas, or
Jennifer Keeton

Saturday, March 21, 2009

Arthrogryposis Multiplex Congenita Support, Inc. teams up with Ebay's Giving Works &

Did you know if you have a PayPal account that you can use it to make a difference in the lives of those affected by Arthrogryposis Multiplex Congenita (AMC). With your help we can continue reaching out to the growing number of AMC Families world wide.

Become an Ebay Community Seller for Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI).

Donate directly by using the Donate Now feature on eBay Giving Works! You can easily make a online gift to your favorite nonprofit organization. Visit the Arthrogryposis Multiplex Congenita Support, Inc. Nonprofit page and simply click on the Donate Now tab.

Donate as little as $5--all it takes is a PayPal account! MissionFish will ensure that your gift is delivered safely and securely to your chosen nonprofit organization. *Please note: Donate Now enables you to make a cash contribution directly to your favorite nonprofit. However, you may not use Donate Now to pay for any eBay Giving Works items you have purchased, nor to make donations that resulted from eBay Giving Works listings that you sold.

There is a small deduction (3.75%) taken from the total gift amount to help offset processing fees, but if you'd like to ensure that 100% of your gift reaches the benefiting nonprofit, you may choose to add 3.
75% to your donation amount--and this additional amount is also tax-deductible!

What does AMCSI do with the donations we receive?
With the explosive and exciting growth that our organization has experienced in the past three years, our cost of operation has also increased. All donations collected by AMCSI's all volunteer staff & management, will fund continued maintenance and yearly fees of our message boards, & to fulfill our mission & vision statements.* A very small amount will be used for administrative overhead such as postage, printing, etc..

One of our most valued events is our Annual AMC Support Convention held in various cities throughout the US each year.
July 16 - 19, 2009 we will be hosting our 4th Annual AMC Support Convention in Philadelphia, Pennsylvania!! For more information on how you can attend, visit:

Please feel free to have a look at our previous annual conventions by visiting:
1st Annual AMC Support Convention - Chicago, Illinois - 2006
2nd Annual AMC Support Convention - Arlington, Texas - 2007
3rd Annual AMC Support Convention - Dublin, Ohio -2008
Pictures courtesy of Rick Guidotti, Positive Exposure Photography
43 East 20th Street New York, NY 10003 Email:

Still have questions? Contact AMCSI via:
Box 1883 Salyersville, Ky 41465

*AMCSI Mission Statement:
To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conventions, Meetings, and Studies.

*AMCSI's Vision Statement:

To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include but not limited to occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.

Tuesday, March 3, 2009

I am looking for your help, please go and Vote for my friend Peg!!

In voting for Peg's project:
Perfectly Imperfect, a Black and White Photography Exhibit
you will be supporting families served by Shriner's Hospitals:
as well as Arthrogryposis Multiplex Congenita Support, Inc.

She is the creator/director/producer of the AMC Documentary:
"The Sweetest Gift: Living with Arthrogryposis Multiplex Congenita"


If you would, please re-post this and pass it along to all your friends, family and colleagues so we can help Peg 'give back' to an organization that has done so very much not only for her son Owen, but for individuals with AMC worldwide! =o)

Friday, February 20, 2009

Registration for the 4th Annual Arthrogryposis Mulitplex Congenita Support Inc. in PA is now OPEN!


We are so excited to announce to you that registration for the 4th annual Arthrogryposis Multiplex Congenita Support Inc. in Philadelphia, PA is open.

We have a wonderful line up of speakers, and group activities scheduled, including Dr Judith Hall and Luca Patelli, (a.k.a. Lazylegs.)

If you are even thinking of attending please register and you will be sent hotel information. We will be capping this year's rooms at the hotel as space is limited and they are unable to offer more rooms at the discount rate.

We have been working very hard to bring you a great convention!
If you have any questions feel free to E-mail:
Here is the link:

Target Audience: The target audience of this convention are parents and caregivers of children with AMC, adults with AMC, physicians, physical therapists, occupational therapists, early interventionists and any others interested in learning more about Arthrogryposis Multiplex Congenita.

Purpose: The purpose of this convention is to increase awareness of AMC. Expand the knowledge of parents and professionals about this rare disorder. To provide families comfort, support and hope through other parent's journeys and through the encouraging life stories of Adults with Arthrogryposis.

Objectives: To help children, teens and adults with Arthrogryposis reach their fullest potential through the education of parents, professionals and the public.

Cost to Attend: This convention is free for anyone but registration is required!

Convention Preview

AMCSI is honored to announce the attendance of Dr. Judith Hall. One of the leading medical researchers in the field of Arthrogryposis Research.

Luca “Lazylegz” Patuelli,,en/ Luca’s crutches are used in the same way as shoes; ‘’they are more of an accessory than a necessity’’. His disability never stopped him from accomplishing what doctors and most people considered impossible and according to Luca, it has helped him become the man he is today.

Thursday 7/16
Tentative Family Outing to Sesame Place
Medical Professionals Meeting *

*Limited time constraints of medical professionals in attendance prevents AMCSI from requesting they provide personal or one on one consults with attendees.

Friday 7/17
Family Medical Related Meetings
Talent Night for AMC'ers

We are hoping to have a panel discussion for parents, teens ready for college, and those who have launched off to college to share experiences talk about decision making processes and things that they needed to consider in the process.

Annual Events
Painting with Theresa
AMC Teen Workshop
AMC Adult Workshop
Sibling Workshop
Hopes & Dreams
Arthrogryposis Multiplex Congenita Support Inc, BOD Public Meeting

The AMCSI Board of Directors will not ask the speakers, presenters, or vendors attending our 4th Annual AMCSupport Convention to provide one-on-one meetings, consultations, or any other specific medical recommendations to you, your child, or your family. Furthermore, any and all medical information, therapeutic techniques, etc., obtained while in attendance should promptly be consulted with your/your child’s physician prior to any form of implementation. We will not be responsible for ANY medical advice provided to you while at our convention or the result thereof. Any and all of our AMC Support Conventions are strictly a gathering for educational and recreational purposes until stated otherwise.

Monday, January 26, 2009

AMCSupport Map - Where in the world are you?

AMCSupport Map - Where in the world are you?
If you or your family are living with AMC register at
and add yourself to our Map!